Ben (Inquiry) is in the hospital :(

Phil, on 2014-June-16, 06:39, said:

So happy to hear you are doing well. (A friend) had Guillen Barre a few years ago (knocking over bidding boxes; stuff like that) but came through ok. Glad this is over for you.

See you in Vegas.

If I had Fisher Syndrome (well Miller Fisher), the typical recovery to get out of hospital is a couple of weeks. I recovered somewhat faster. I missed a lot of the normal MFS symptoms but had some of the major ones. My tongue became paralyzed, I lost the ability to talk, to spit, to wrinkle my forehead, to swallow,to close my eyes, to whistle, to keep fluid in my mouth (leaked out between my lips), couldn't protect my airway, and eventually to breathe on my own.

MFS usually is preceded by the a staggered gait when walking, I never had that, and lost of eyesight or at least blurred or double vision, Inever had that either. Also, like Guillen Barre, it often has some weakness in the arms and legs, etc, that shows up as failed nerve conductance test, I never had that -- and I passed all the nerve conductance test they ran on me other than for facial nervers.

So the doctors are not really sure what I had other than some autoimmune neuropathy with major findings similar to the major problems associated with MFS. They still are waiting for some of the immunochemistry results to return. The major one is to see if I had antibodies to ganglioside G1qb (most commonly of the IgG class). Not sure why this is taking so long, as some of you know, I am a retired immunochemist who among other things taught immunology to first year medical students. I could have done the testing for this in my lab in no tjme at all. Sigh.

In addition to the normal MFS mentioned above, I was producing an extraordinary amount of very viscous mucus which combined with the inability to swallow or spit was compromising my airway really, really badly, even before I completely lost the ability to swallow. Anyway, I seem to be getting better everyday, and slow I am beginning to increase my daily activities. Soon I should be back full strength. I do hope to see you in Vegas, maybe BBO might hold a meet-and-greet (I am not saying they will, but at a couple of nationals I attended they did) and we can all gather there.

This post has been edited by diana_eva: 2014-June-24, 15:36
Reason for edit: fixed quote

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